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Autism: making the shift

Autism is a complex neurodevelopmental disorder that affects approximately 1 in 36 children. Traditionally, the narrative around autism has been deficit-based, focusing on the challenges and struggles that individuals with autism face. While it is important to acknowledge these issues, it's time to make a shift and adopt a strengths-based approach to autism. This approach recognizes the unique abilities and potential of individuals with autism, encouraging empowerment, self-advocacy, and respect for their identity.

From Disorder to Difference

One of the most significant shifts in our understanding of autism involves reframing it from a 'disorder' to a 'difference'. This change in perspective acknowledges that autism is not a disease or an illness that needs to be cured, but rather a different way of experiencing the world. It recognizes that individuals with autism have unique perceptual and processing abilities that can contribute to society in valuable ways.

Language Matters: Person-First vs Identity-First

The language we use when talking about autism also plays a crucial role in influencing perceptions. There has been a long-standing debate about whether to use person-first language (e.g., "person with autism") or identity-first language (e.g., "autistic person"). While person-first language emphasizes the individual before their diagnosis, many within the autism community prefer identity-first language as it acknowledges their identity as an autistic person as an integral part of who they are. Ultimately, the choice of language should respect the personal preferences of each individual.

Teaching Self-Advocacy Over Social Skills

Historically, a primary focus in autism intervention has been teaching 'social skills', with the intention of helping individuals with autism to fit into societal norms. However, this approach can often neglect the individual's unique needs and perspectives. An alternative approach is to teach self-advocacy, empowering individuals with autism to communicate their needs and rights effectively, and to participate fully and meaningfully in society.

Interest Over Obsession

Individuals with autism are often described as having 'fixations', 'obsessions', or 'perseverations'. However, these terms can have negative connotations, implying a pathological or abnormal intensity of interest. Shifting our language to refer to these as 'areas of interest' can help to normalize and validate the passionate pursuits of autistic individuals. We should be connecting based on their interests.

Non-Speaking Over Non-Verbal

There is a common misconception that individuals with autism who do not speak are 'non-verbal'. However, not speaking does not equate to not having anything to say. Many non-speaking individuals with autism can and do communicate in other ways, such as through writing, sign language, or AAC (Augmentative and Alternative Communication) devices. Therefore, the term 'non-speaking' is a more accurate and respectful descriptor.

Child-Led Over Compliance-Based

Finally, in our approach to supporting individuals with autism, it is crucial to shift from a compliance-based approach to a child-led approach. A compliance-based approach often involves enforcing strict routines and expectations, which can be stressful and disempowering for the individual. In contrast, a child-led approach respects the individual's autonomy and unique ways of learning, fostering a more positive and empowering learning experience.

In conclusion, it's time for us to shift our perspective on autism, focusing on strengths and potential rather than deficits. By doing so, we can create a more inclusive and respectful society that values and embraces neurodiversity.

What are your thoughts?

-Miss Steph